Brushing Hair

 Brushing hair and styling hair is a great way to care for a loved one. It brings such joy. This ER nurse is amazing.

https://fb.watch/agP_c_SMX8/

The Problem of Alzheimer's by Jason Karlawish

 I was introduced to Alzheimer's at the age of 4 when I became a caregiver to my grandmother who had Alzheimer's disease. This book is a must-read. Thank you Lynda Everman for bringing it to my attention.

2021 Alzheimer's Association Report: Race Ethnicity and Alzheimer's Disease

 

The 2021 Alzheimer's Disease Facts and Figures report: Race, Ethnicity and Alzheimer's in America. The statistics are upsetting. There is a huge disparity and sometimes even discrimination and bias in the care of Alzheimer's patients.

 By 2050 there will likely be 12.7 million Americans living with Alzheimer's disease. There are 3 types of disparities: HEALTH -black,indigenous people of color (BIPOC)are MORE likely to be diagnosed with Alzheimer's and other dementia diseases; and they are less likely to be recruited and used for research and clinical trials, HEALTH CARE - is not adequate for BIPOC, and there is bias and sometimes discrimination.

 BIAS - language and cultural bias exists in the care of Alzheimer's patients There are SOLUTIONS to the problems that exist. 1) Awareness amongst healthcare providers - they should evaluate and consider a diagnosis and treatment plan for minority groups. 2) Diversity in Alzheimer's care - institutions that house Alzheimer's patients should be diversified providing resources and tools for care for all. 3) Diversity of the participants in clinical and research trials.

Click below for the full article

://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf

The Youth Movement Against Alzheimer's Spotlight

 

Cure Alzheimer's Fund

I am hoping for a cure for Alzheimer's disease. Or at least preventative measures that could really make a big impact.  I donated part of my Prudential Spirit of Community National Honoree Award money to the Cure Alzheimer's Fund.

Here are some facts:

They support breakthroughs in the field like the Alzheimer's Genome Project 

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• Cure Alzheimer's Fund - Hailey Richman
• All donations go directly to fund research leading to a cure
• They encourage scientists to pursue unusual ideas and take bold risks
• They are funding some of the world's leading researcher

Disparities in The Alzheimer's Community Social Justice Within the Alzheimer's Community: Dr. Nii-Quartelai Quartey

I was fortunate to hear Dr. Nii-Quartelai Quartey speak at the National Alzheimer's Conference in 2018. He is a Senior Advisor and National LGBT Liason Multicultural Leadership Community State and National Affairs. 

His message really touched me and I realized the importance and significance of reaching many communities within the Alzheimer's Community. He speaks about the difficulties that the LGBT community faces with caregiving. 

Elderly LGBT members who are in need of caregiving or who are caregivers are overwhelmed. They need resources. Elderly LGBT members are less likely to be married or have children. They desperately need resources. And youth members who are part of the LBGT community are also burdened with caregiving.

 Kid Caregivers is advocating for resources and young caregivers who need us. We are getting puzzles out specifically to communities in need of Alzheimer's puzzles. We will have upcoming zoom sessions for members of that community. Stay tuned for a Zoom code.