Wednesday, May 19, 2021

2021 Alzheimer's Association Report: Race Ethnicity and Alzheimer's Disease


 


The 2021 Alzheimer's Disease Facts and Figures report: Race, Ethnicity and Alzheimer's in America. The statistics are upsetting. There is a huge disparity and sometimes even discrimination and bias in the care of Alzheimer's patients.

 By 2050 there will likely be 12.7 million Americans living with Alzheimer's disease. There are 3 types of disparities: HEALTH -black,indigenous people of color (BIPOC)are MORE likely to be diagnosed with Alzheimer's and other dementia diseases; and they are less likely to be recruited and used for research and clinical trials, HEALTH CARE - is not adequate for BIPOC, and there is bias and sometimes discrimination.

 BIAS - language and cultural bias exists in the care of Alzheimer's patients There are SOLUTIONS to the problems that exist. 1) Awareness amongst healthcare providers - they should evaluate and consider a diagnosis and treatment plan for minority groups. 2) Diversity in Alzheimer's care - institutions that house Alzheimer's patients should be diversified providing resources and tools for care for all. 3) Diversity of the participants in clinical and research trials.

Click below for the full article

Thursday, January 7, 2021

Cure Alzheimer's Fund


I am hoping for a cure for Alzheimer's disease. Or at least preventative measures that could really make a big impact.  I donated part of my Prudential Spirit of Community National Honoree Award money to the Cure Alzheimer's Fund.

Here are some facts:
  • They support breakthroughs in the field like the Alzheimer's Genome Project 



    • Cure Alzheimer's Fund - Hailey Richman
    • All donations go directly to fund research leading to a cure
    • They encourage scientists to pursue unusual ideas and take bold risks
    • They are funding some of the world's leading researcher

    Thursday, December 17, 2020

    Disparities in The Alzheimer's Community Social Justice Within the Alzheimer's Community: Dr. Nii-Quartelai Quartey



    I was fortunate to hear Dr. Nii-Quartelai Quartey speak at the National Alzheimer's Conference in 2018. He is a Senior Advisor and National LGBT Liason Multicultural Leadership Community State and National Affairs. 

    His message really touched me and I realized the importance and significance of reaching many communities within the Alzheimer's Community. He speaks about the difficulties that the LGBT community faces with caregiving. 

    Elderly LGBT members who are in need of caregiving or who are caregivers are overwhelmed. They need resources. Elderly LGBT members are less likely to be married or have children. They desperately need resources. And youth members who are part of the LBGT community are also burdened with caregiving.

     Kid Caregivers is advocating for resources and young caregivers who need us. We are getting puzzles out specifically to communities in need of Alzheimer's puzzles. We will have upcoming zoom sessions for members of that community. Stay tuned for a Zoom code.



    Saturday, November 21, 2020

    Kid Caregivers Donates 1000 Puzzles to ARTIS Senior Living for COVID-19 Relief

     

    We have exciting news! The ThredUp Store (www.thredup.com) had a wonderful campaign. During the height of the Covid-19 pandemic when several states had a "shelter in place", ThredUp had an amazing incentive. During the shelter in place, many people turned to jigsaw puzzle-solving as a relaxing pastime. When they were finished with all of their puzzles, they wanted to donate them. ThredUp the world's largest consignment online thrift store, had a wonderful offer. The plan was for every puzzle donated to their store, they would donate a meal to Feeding America (www.feedingamerica.org). Thousands of generous donors sent in their puzzles and they amassed 12,000 puzzles! They closed the initiative in May. ThredUP needs their warehouse space. Their warehouse has 12,000 puzzles in need of a home! That part is where Kid Caregivers comes to the rescue! If you know of an organization on the East Coast that is willing to take a bulk order of 1000 puzzles in which to distribute them to nursing homes, memory care facilities, etc, please reach out to us! We are working with middle and high school students who will distribute the puzzles with us and receive volunteer service credit. We also have OUTDOOR Puzzle Time! Using COVID-19 precautions our volunteers can STILL participate in our Intergenerational Puzzle Time Program. Student volunteers wear masks and follow safety guidelines.  Read the story herehttps://people.com/home/this-mail-in-puzzle-swap-program-lets-you-buy-sell-puzzles-for-only-5-with-1-to-charity/

    Sunday, November 1, 2020

    ThredUp Consignment Company donates 12,000 Puzzles To Kid Caregivers for COVID-19 Relief

    We have exciting news! The ThredUp Store (www.thredup.com) had a wonderful campaign. During the height of the Covid-19 pandemic when several states had a "shelter in place", ThredUp had an amazing incentive. During the shelter in place, many people turned to jigsaw puzzle-solving as a relaxing pastime. When they were finished with all of their puzzles, they wanted to donate them. ThredUp the world's largest consignment online thrift store, had a wonderful offer. The plan was for every puzzle donated to their store, they would donate a meal to Feeding America (www.feedingamerica.org). Thousands of generous donors sent in their puzzles and they amassed 12,000 puzzles! They closed the initiative in May. ThredUP needs their warehouse space. Their warehouse has 12,000 puzzles in need of a home! That part is where PuzzlesToRemember comes to the rescue! If you know of an organization on the East Coast that is willing to take a bulk order of 1000 puzzles in which to distribute them to nursing homes, memory care facilites, etc, please reach out to us! We are working with middle and high school students who will distribute the puzzles with us and receive volunteer service credit. Read the story herehttps://people.com/home/this-mail-in-puzzle-swap-program-lets-you-buy-sell-puzzles-for-only-5-with-1-to-charity/