Power of Children Award

 We are very excited that our Executive Director, Hailey Richman was chosen as an awardee for the Power Of Children Award. Hailey is planning to use the award money to provide puzzles to Alzheimer's patients that are facing disparities. As a passionate influencer for Diversity, Equality and Inclusion (DEI) is is important that resources will be given to communities that are in need.

National Alzheimer's Disease Awareness Month

 To all the kids who are acting as caregivers, I hear you, I feel for you. Our voices need to be heard. For National Alzheimer's Disease Awareness Month our eyes and hearts are with you.

November is National Alzheimer's Disease Awareness Month. In 2021 over 11 million family caregivers will provide an estimated 1.5.3 billion hours of difficult, selfless, and unpaid care for 6 million loved ones living with dementia with a financial value of $257 billion. The numbers, the sacrifices and the suffering are staggering. And so is the isolation that comes with this disease.

There are many ways we can offer our support. Please take a moment to simply #DoOneThing to alleviate this burden on our friends and our society.

I lost my grandma who had Alzheimer's disease on April 14, 2021. For all who are currently struggling with this difficult disease, in their memory, I stand with you and continue to work to advance better and more compassionate care, prevention, and a cure. #ENDAlz

My Friend Greg O' Brien, Diagnosed With Early Onset Alzheimer's Disease

 He shares strategies for LIVING with Alzheimer's disease. This video is easy for kids to understand. 

I met Greg O'Brien at the National Alzheimer's Summit and I think he is just amazing. Tune into this funny and inspiring and optimistic interview with Dr. Lisa Genova! His book On Pluto: Inside the Mind of Alzheimer's speaks of faith, humor and hope from his perspective. 

I think tweens and teens would find this book so incredibly helpful! He gives suggestions about how to live with the disease. I would have loved to have read this book a few years ago. 

 hohttps://youtu.be/7u_i-FXlZzY

There is now an incredible documentary about him called, "Have You Heard About Greg". Here is a trailer link: https://www.hyhag.com

Brushing Hair

 Brushing hair and styling hair is a great way to care for a loved one. It brings such joy. This ER nurse is amazing.

https://fb.watch/agP_c_SMX8/

The Problem of Alzheimer's by Jason Karlawish

 I was introduced to Alzheimer's at the age of 4 when I became a caregiver to my grandmother who had Alzheimer's disease. This book is a must-read. Thank you Lynda Everman for bringing it to my attention.

2021 Alzheimer's Association Report: Race Ethnicity and Alzheimer's Disease

 

The 2021 Alzheimer's Disease Facts and Figures report: Race, Ethnicity and Alzheimer's in America. The statistics are upsetting. There is a huge disparity and sometimes even discrimination and bias in the care of Alzheimer's patients.

 By 2050 there will likely be 12.7 million Americans living with Alzheimer's disease. There are 3 types of disparities: HEALTH -black,indigenous people of color (BIPOC)are MORE likely to be diagnosed with Alzheimer's and other dementia diseases; and they are less likely to be recruited and used for research and clinical trials, HEALTH CARE - is not adequate for BIPOC, and there is bias and sometimes discrimination.

 BIAS - language and cultural bias exists in the care of Alzheimer's patients There are SOLUTIONS to the problems that exist. 1) Awareness amongst healthcare providers - they should evaluate and consider a diagnosis and treatment plan for minority groups. 2) Diversity in Alzheimer's care - institutions that house Alzheimer's patients should be diversified providing resources and tools for care for all. 3) Diversity of the participants in clinical and research trials.

Click below for the full article

://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf